Band of Roses
Thursday, December 6, 2018 at 6:00 PM
Five years ago, a group of young adults met to discuss creating an event in Fort Worth that would honor both Jeff Proctor and me, who both live every day with cystic fibrosis. The intent of the event was to raise awareness about the disease while also raising financial support to help fight it. What started as a small tailgating event has now become an annual holiday success. Band of Roses has been instrumental both in fundraising so that important progress can be made in our search for a cure.
Upon the inception of the Band of Roses, the only approved drugs available to us solely treated the symptoms of cystic fibrosis. Fast forward to today, we now have three FDA approved drugs, ivacaftor (Kalydeco), lumcaftor/ivacaftor (Orkambi) and tezacaftor/ivacaftor (Symdeko), that treat the underlying cause of the disease in more than half of all CF patients. All of these medical advancements have come to fruition because of successful events, including our very own Band of Roses right here in Fort Worth.
We truly are witnessing the most significant years of scientific progress in CFF’s history, and fortunately, Jeff and I are blessed to reap the benefits of these medical advancements. I have been taking ivacaftor (Kalydeco) twice a day for almost three years and have almost been hospital free except to give birth to our beautiful second son, Rhett Montgomery, in June. Jeff received a lifesaving liver transplant in December 2012 after being on the transplant list for almost a decade. Being a post op transplant patient means that he is not a candidate for these new drugs, but the CF Foundation is working hard to develop safe and effective drugs for all of their patients, including those who have received a transplant. Despite a few bumps in the road, Jeff has been able to avoid hospital stays for the past 2 years. He is busy having fun with his wife and two children.
We hope that you will choose to join us at Band of Roses and help us to continue our search for a cure for all with cystic fibrosis. We are grateful to you for playing such a key role in our success!
Thursday, December 6, 2018
VIP Reception 6:00pm – 6:30pm
Event 6:30pm – 10:00pm
The 4 Eleven
411 S. Main Street
Fort Worth, TX 76104
We are driven by the hope that one day we will refer to cystic fibrosis as a disease “we once had.”
Paige Montgomery Ryan Montgomery